About a year ago normal life came to a halt. Our new normal has become frequent visits to our 2nd home at Joe DiMaggio Children's Hospital Pediatric Intensive Care Unit.
During our first admission last June we were told that our daughter had a rare heart condition. She was non symptomatic for a few days so we were heading towards being discharged. We were told that we needed to purchase a portable AED Machine just in case she went into Cardiac arrest at Home. After a quick search on the internet we discovered that this device was expensive and we were not in the financial position to make such a purchase. When the social work team heard of our situation they immediately told us about the Joe DiMaggio Children's Hospital Foundation. Within an hour we were notified by social work that the Foundation had purchased the machine for us and it would be shipped over night and at our front door in time for our homecoming.
Unfortunately less than a week later we had to use the AED as Amelia went into Cardiac arrest in our living room.
This was the beginning of our 2nd admission which was the longest as the cardiac team had to come up with a plan to save our Amelia. During this time we were offered a room at the Conine Clubhouse which we declined as we did not want to leave our daughters side.
The Foundation has gone above and beyond to help us and so many other families that we got to know during our stay. And the care Amelia received was so individualized, so personal and so touching that it is beyond anything I can put into words.
Today as I get to wake up and see her beautiful face every morning, I know it is thanks to the amazing team of Doctors, Nurses and Staff that saved her life.
The care we received as a family was beyond exceptional and we cannot thank her everyone enough.
We feel blessed to say we are a Joe DiMaggio Children's Hospital Family.